hello guys... Im sorry I failed to post the continuation of my story... what I did ako nalang gi copt akong post sa fb para sa akong close friend ha..... here it goes......
hi ate LV... i MISSED YOU.... I never thought I could comment here in ur facebook again... Ate I undergone tragic incedent jud... I even had a near death experienced. I had cerebral infarct, my brain was attact with my antibodies. I have Lupus. my lupus is still flaring up, my platelet is srill low. my eyes is affected..., my visual field is affected, I couldnt see now clearly. I need your help.. pls. pray for me.
January 21, my birthday, our 1st civil wedding anniversary I was rushed to Cebu Doctors Hospital because i was complaining of severe headache but rior to that I WAS ADMITED TO A HOSPITAL IN bOHOL BECAUSE OF ON AND OFF FEVER, THEN I WAS diagnosed of Dengue again.. but my doctor suspected already for Lupus but he couldn...t say so because there was a Lupus Panel test to confirm. on Jan 21, I undergone CT Scan in bohol, unfortunatelly the test was negative, so my blessing in diguise my sissy says, the test might be wrong, I was manifesting severe headache as in ga tuwad tuwad na daw ko te sa ka sakit akong mata mi lukluk nah as in puti nay makita and the CT scan would only say NEGATIVE, so my sister insisted nga e forward nalang ko sa cebu since wala man sad lupus panel sa bohol...
so I was rushed to CDC, as in emergency case jud ko te.. gi hatud ko doc from Bohol para mo endrse, then gi tagbo mi sa ambulance sa cdc sa pier as in gi streatcher jud daw ko... sa akong kadaku... hihihii
sa CDC: wala ko gi CT scan ug usab but then after the plate we had from Bohol was re read and it was found out I had CEREBRAL INFACT. then nag Lupus panel test wow GRABEH ATE MAHAL MAN DIAY NAH COST 32THOUSAND PESOS FOR THAT TEST ALONE? gOD! THEN THE RESULT WAS positive. i HAVE lUPUS.... after 11 days nag MGH nako then I went home to Pilar for the home management...
while I was at home, nag epistaxis ko te... then evry now and then man akong platelet gina check then nag 21 sya. so nag p .. wala pa gani next sked sa akong check up....so nagpa check up mi... sus ate imbis kay magpa chek up ra unta mi ate my doc insited jud nga e admit ko bcoz i was in danger kay ni baba man jud akon...g platlet ug 18 as in... wen I WAS ADMITED LUYA KAAYO KO TE, ingon akong sissy nga nag tungon na daw ko wer ko pa lubong, nga nag kita daw ni sa akong papa, akong lolo, tatay ni bonie nga namatay na baya sila te... But adto daw pod nga time cge daw ko pray... Ted had witness that... I EVEN ASKED abonie dro nga time nga mo adto nako kay gi kapoy nako.,,, but they never said yes....
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ate sa akong situation karon I have minimal memory loss bcoz of the infarcrt I am aware of what was happened bcoz they are telling me... I was even mentally unstable daw te... as in pang ward 12 jud daw ko... my diagnosis was kind of Neural-Psychiatric SLE daw....
ate, ako bitaw daw cge rako payaka ug storya bisan dile tinood daw/.. ingon sila funny pajud daw te kay sige daw ko mention food nagpaila jud daw ko sa lawas... ate nag reminise daw ko sa atong time na sige ta adro daghan kan anan... hehehehehe....
ate there was even a time daw nga I was refusing to my medications, loss of apitite... then that time nang sige rako pray, denial daw kaayo ko sige rako ingun nga Lprd forive them kay dili sila motoo nga wala koy sakit... then suddenly diha juy na sintop sa akong mind nga God has a message for me nga dapat ko mo read sa bible so i ask them a bible... See More, I even ask the nun nga nag pa kalawat nao pero wala man na hatud then my brother bought a bible for me.. then pag diha na ang bible I opened daw ako ako lang daw... then akong gi basa then the mmessage was something ---- DO NOT BE STUBORN kay ug mag stuborn daw ko something bad will happen... so right there and then daw ni obel na daw ko... inum nadaw ko sa tambal and all... ambot ate I do believed it was God, I do believed God truly love me.... s us ate sa pag baba sa akong platelet my doc prescribed for the ivtt meds which work as a barrier sa platelet againts my antibodies since akong platelet naman sad ang si attake that time sa lupus.. and i had signs of bledding nah sa akong G.I. ate gi recitahan ko sa tambal nga WINRHO. ate mahal kaayo would you believed it it cost 232 thousand pesos, and gi yarok ra sa akong lawas in just 5 minutes. but then my doc was confident enuf bisan hinay kaayo akong platelet nag saka util now wala pa na normal naa pako sa 110 pero that time gi discharge ko bisan 42 pa akong platelet. until now my platelet is monitored every week and i have doc visit evry month, karon April 13 pohon akong next check up... upon assesssing myself, I am getting well naman guro ate base sa akong pamonaw... akong mental k naman daw wala naman sad ko nagpataka... thenso obey nalang jud ko . I could control myself napod daw... sauna magtu,am daw ko unsa akong like e eat, pero karon I could resist unsa akong bawal... ate daghan kaayo kog bawal te... mura nako ug sabadista... veg, fruits, fish and chickn nalang akong pwede... no more ice creams, sodas, chocolates... low salt and low sugar akong diet to prevent complications... dile mn ko DM ug hi BP... so obey nalang jud ko ate.... mahadlok ko ma experience nako utro tong nag lisud ko ate... i want to live pa.. I want to enjoy life pa ate... wala may lain maka ayo ako ra sad.... mag obey nalang jud ko.... I keep on praying to God every now and then jud te.... akong doc nag mention bag o lang nga kon dile ma ok akong self simbako lang naa napod tambal mahal kaayo worth 300thousand and that RITUXIMAB nah ate asa man tawun mi money ani wui... mao karon daginot jud, then save... para maka pundar mi aning daku nga kantidad kay ingkaso maayo man ning ma prepare ta.... pero all i need now is prayer nga everything will be alright... everything will be ok.... ate pls. help me... pls. pray for me... I missed you and best regards....
and now I have a lot of expenaive meds nga gi maintain, all I have to do is to take r
them religiously para maayo ko. I am on a high dose steroids, I am now an immuno supprressed patient, I am home buddy now bawal ang crowd, bawal and init, bawal ma stress...
Ate pls... pray for me ok.... O wish I could see you again someday... I missed you
ate honestly we are under financial storm jud karon nanghinaut ko nga ma ok nako para dile nako need sa rituximab which is so mahal. but then to be prepared nag hinayhinay mi save ug tapok sa money anybody nga nagpadala nako ug help any amount amo jud gi dritso sa banko ate kay for rainy days gyud nah kay dili baya matag-an ang panahon...
so here is my bank details in case you wish to know.... baga kaayo nawung sah? sorry ate....
bank name: BANK OF THE PHILIPPINE ISLLANDS
account name: ELSIE AMILA
account number: 94-79-0542-55
mailing address: 6321, poblacion, pilar bohol, philippines.
Linkback:
https://tubagbohol.mikeligalig.com/index.php?topic=26478.0