Author Topic: HE TRULY LOVES ME...  (Read 1764 times)

st. agnes

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HE TRULY LOVES ME...
« on: March 29, 2010, 09:14:49 AM »
Hi everyone...
its nice to be back home...
though I could hardly see now but still Im trying to be normal here bahalag hinay rako mag dokdok dire because I want to share with you my experiences....
d ko, then my doc prescrid
I think Ate Lee had posted here about my sotuation because i asked her so... I thank you all for your prayers, There is really nothing imposible if we only believed in him.. Last January I was hospitalized at St. Jude hospital in Tagbilaran for I think 4 days because of on and off fever, then my physician suspected for Lupus, but his diagnosis for me was dengue because my platelet was low and Boohol dont have a Lupus Panel tetst to confirm his doubt. after 4 days na discharge and I was prescribed for steroids then and refer for another doc to see me with his doubt about Lupus.  better then and aside from the fact nga wala mi to consult another doc because I feltso what we did we went home to our hometown wala nami mi bother sa referal bcause aside from the fact nga wala mi lkwarta baya...
Then pila ray istorya, pila ka adlaw milabay I go to work... my forst exposure as a registered nurse, nag duty ko sa community for 2 shifts, then mipauli ko sa Pilar then after pila ka adlaw, I remember I texted my sister that I am manifesting nga naa koy nakita nga flashing of lights sa akomata, I ask my sissy if side effects ba ni sya sa tagbilaaran community, then na dmit nasad ko didto, my Neuro doc suspected for internal bleeding kay nag suka daw ko redish, then nagpa ct scan mi sa rAMIRO then ang result sa ct scan was negative,  my sister insisted mga dili jud daw negative dapat kay mura na daw jud ko mamatay sa kasakit sa akong ulo... so they decided to brought me to Cebu, so the nexr morning they rushed min cebu to cebu doc and everything was arrannged then so gi tagbo nami sa ambulance sa cebu doc. my doc in cbu advise for rereading on the same playe I had sa ramiro what the hospital foud was CEREBRAL INFARCT . I really thank God for guiding everyone jud kay ug wala pakona forward sa cebu, I dont know..... then lupus panel ws also perfoemed, sus Ginoo ko one lad procedure ka mahal bah 32 rgousand daw? ten itwas positive.. I have Lupus..


to be continued... mo rest sa ko ha....

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ms da binsi

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Re: HE TRULY LOVES ME...
« Reply #1 on: March 29, 2010, 09:21:13 AM »
i wish you the best of health Els. take extra care OK?

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Scarb

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Re: HE TRULY LOVES ME...
« Reply #2 on: March 29, 2010, 09:25:22 AM »
im praying for you Els bizan dli takos ky badlongon baya ngee...

 take care !

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borobotoy

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Re: HE TRULY LOVES ME...
« Reply #3 on: March 29, 2010, 02:52:34 PM »
Take care always Els!! Sorry wala jud ko ka donate sa dugo  kay last december pako gikwaan..Hoping na maka visit mi nimo dha someday

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st. agnes

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Re: HE TRULY LOVES ME...
« Reply #4 on: March 29, 2010, 04:43:35 PM »
thank you so sa inyong prayers..
@ borobotoy wala nay probs gitz   

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st. agnes

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Re: HE TRULY LOVES ME...
« Reply #5 on: March 29, 2010, 05:52:49 PM »
cont. then I WAS ADMITED AT CEBU DOC.

currently I have minor memory loss and myopia due to cerebral infarc.

according to my sissy when I was rush to community hospital grabe na kaayo ko cge daw koko reklamo sakit ayo akong ulo, nga grabe nadaw kaayo ko akong mata mi uk uk sa puti nadaw makita tanan sa akong eyes, then sige ko ingun dili nako padala sa tagb kay dili jud kaya mamatay nako.

but my sister says hapit nadaw mi bisan layo pa. then when I was in Cebu doc grabe daw ko kay magpataka ug yawit na agi ko ug mentally unstable, as in na boang gyud si st. agnes kadali. and I even says nakakita nako ni papa, akong apohan ugangan nga nangamatay akong ingon nila nga naa sila... as in near death signs jud....

kon akoy pangutan-on wala ko nasayud sa akong gipangbuhat, aware lang ko kay ila ko gi inform.

sus! ka ambisiosah jud nako diay.... sige rako yawit daw ug kaon.... magpili unsa i sul ot bisan wala gud ko atong mga sanina a mga branded pa jud daw... na boeng lage daw ko as inn psychia jud...

after 1 daya na discharge ko... then uli mi sa Pilar... schedule ko after 1 wk para check up.

then wala pa gani 1 wk nag sunggo ko, then gi advise ko sa akong doc magpalab .. believe it or no my platelet was 21

then sked nag check up aking platelet nasad ni 19 imbis check up rato wala jud ko biho e ni doli lay in danger najud daw ko then gipa admit ko as in wala jud mi kwarta ato kay magpa check up ra lage unta mi so what my sissy did nagpa baga mi promise saun gabie naman wala nay western union, salamat kay mi sugot rag cebu doc.

again na dmit ko cebu dpc. as in luya kayko, dile ko katulog kay naglatagaw akong brain kay maoy gi attack sa lupus. akong platelet was monitored every now and then, then it drop to 18 until my dok advise us to get ready with big buckcs as in daku as in 232,000.00pesos kay neeed ko dministeran ug WINRHO as in mahal gyud, akong mama na lirung intawun sa pag bahas bahas ug tawag kinsay mahulbutan sa kwarta.... akong mama is a good provider jud....... I thank God for giving all the people around me.... bahalag punog utang... matud pa ni mama ang kwarta makit an ra ang kinabuhi kas a ra.

continuation nextime nasad time to rest nasad... bawal man ko ma srress wui.....

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st. agnes

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Re: HE TRULY LOVES ME...
« Reply #6 on: April 05, 2010, 08:22:01 AM »
hello guys... Im sorry I failed to post the continuation of my story... what I did ako nalang gi copt akong post sa fb para sa akong close friend ha..... here it goes......

hi ate LV... i MISSED YOU.... I never thought I could comment here in ur facebook again... Ate I undergone tragic incedent jud... I even had a near death experienced. I had cerebral infarct, my brain was attact with my antibodies. I have Lupus. my lupus is still flaring up, my platelet is srill low. my eyes is affected..., my visual field is affected, I couldnt see now clearly. I need your help.. pls. pray for me.
January 21, my birthday, our 1st civil wedding anniversary I was rushed to Cebu Doctors Hospital because i was complaining of severe headache but rior to that I WAS ADMITED TO A HOSPITAL IN bOHOL BECAUSE OF ON AND OFF FEVER, THEN I WAS diagnosed of Dengue again.. but my doctor suspected already for Lupus but he couldn...t say so because there was a Lupus Panel test to confirm. on Jan 21, I undergone CT Scan in bohol, unfortunatelly the test was negative, so my blessing in diguise my sissy says, the test might be wrong, I was manifesting severe headache as in ga tuwad tuwad na daw ko te sa ka sakit akong mata mi lukluk nah as in puti nay makita and the CT scan would only say NEGATIVE, so my sister insisted nga e forward nalang ko sa cebu since wala man sad lupus panel sa bohol...
so I was rushed to CDC, as in emergency case jud ko te.. gi hatud ko doc from Bohol para mo endrse, then gi tagbo mi sa ambulance sa cdc sa pier as in gi streatcher jud daw ko... sa akong kadaku... hihihii
sa CDC: wala ko gi CT scan ug usab but then after the plate we had from Bohol was re read and it was found out I had CEREBRAL INFACT. then nag Lupus panel test wow GRABEH ATE MAHAL MAN DIAY NAH COST 32THOUSAND PESOS FOR THAT TEST ALONE? gOD! THEN THE RESULT WAS positive. i HAVE lUPUS.... after 11 days nag MGH nako then I went home to Pilar for the home management...
while I was at home, nag epistaxis ko te... then evry now and then man akong platelet gina check then nag 21 sya. so nag p .. wala pa gani next sked sa akong check up....so nagpa check up mi... sus ate imbis kay magpa chek up ra unta mi ate my doc insited jud nga e admit ko bcoz i was in danger kay ni baba man jud akon...g platlet ug 18 as in... wen I WAS ADMITED LUYA KAAYO KO TE, ingon akong sissy nga nag tungon na daw ko wer ko pa lubong, nga nag kita daw ni sa akong papa, akong lolo, tatay ni bonie nga namatay na baya sila te... But adto daw pod nga time cge daw ko pray... Ted had witness that... I EVEN ASKED abonie dro nga time nga mo adto nako kay gi kapoy nako.,,, but they never said yes....
See More
ate sa akong situation karon I have minimal memory loss bcoz of the infarcrt I am aware of what was happened bcoz they are telling me... I was even mentally unstable daw te... as in pang ward 12 jud daw ko... my diagnosis was kind of Neural-Psychiatric SLE daw....
ate, ako bitaw daw cge rako payaka ug storya bisan dile tinood daw/.. ingon sila funny pajud daw te kay sige daw ko mention food nagpaila jud daw ko sa lawas... ate nag reminise daw ko sa atong time na sige ta adro daghan kan anan... hehehehehe....
ate there was even a time daw nga I was refusing to my medications, loss of apitite... then that time nang sige rako pray, denial daw kaayo ko sige rako ingun nga Lprd forive them kay dili sila motoo nga wala koy sakit... then suddenly diha juy na sintop sa akong mind nga God has a message for me nga dapat ko mo read sa bible so i ask them a bible... See More, I even ask the nun nga nag pa kalawat nao pero wala man na hatud then my brother bought a bible for me.. then pag diha na ang bible I opened daw ako ako lang daw... then akong gi basa then the mmessage was something ---- DO NOT BE STUBORN kay ug mag stuborn daw ko something bad will happen... so right there and then daw ni obel na daw ko... inum nadaw ko sa tambal and all... ambot ate I do believed it was God, I do believed God truly love me.... s us ate sa pag baba sa akong platelet my doc prescribed for the ivtt meds which work as a barrier sa platelet againts my antibodies since akong platelet naman sad ang si attake that time sa lupus.. and i had signs of bledding nah sa akong G.I. ate gi recitahan ko sa tambal nga WINRHO. ate mahal kaayo would you believed it it cost 232 thousand pesos, and gi yarok ra sa akong lawas in just 5 minutes. but then my doc was confident enuf bisan hinay kaayo akong platelet nag saka util now wala pa na normal naa pako sa 110 pero that time gi discharge ko bisan 42 pa akong platelet. until now my platelet is monitored every week and i have doc visit evry month, karon April 13 pohon akong next check up... upon assesssing myself, I am getting well naman guro ate base sa akong pamonaw... akong mental k naman daw wala naman sad ko nagpataka... thenso obey nalang jud ko . I could control myself napod daw... sauna magtu,am daw ko unsa akong like e eat, pero karon I could resist unsa akong bawal... ate daghan kaayo kog bawal te... mura nako ug sabadista... veg, fruits, fish and chickn nalang akong pwede... no more ice creams, sodas, chocolates... low salt and low sugar akong diet to prevent complications... dile mn ko DM ug hi BP... so obey nalang jud ko ate.... mahadlok ko ma experience nako utro tong nag lisud ko ate... i want to live pa.. I want to enjoy life pa ate... wala may lain maka ayo ako ra sad.... mag obey nalang jud ko.... I keep on praying to God every now and then jud te.... akong doc nag mention bag o lang nga kon dile ma ok akong self simbako lang naa napod tambal mahal kaayo worth 300thousand and that RITUXIMAB nah ate asa man tawun mi money ani wui... mao karon daginot jud, then save... para maka pundar mi aning daku nga kantidad kay ingkaso maayo man ning ma prepare ta.... pero all i need now is prayer nga everything will be alright... everything will be ok.... ate pls. help me... pls. pray for me... I missed you and best regards....
and now I have a lot of expenaive meds nga gi maintain, all I have to do is to take r
them religiously para maayo ko. I am on a high dose steroids, I am now an immuno supprressed patient, I am home buddy now bawal ang crowd, bawal and init, bawal ma stress...
Ate pls... pray for me ok.... O wish I could see you again someday... I missed you
ate honestly we are under financial storm jud karon nanghinaut ko nga ma ok nako para dile nako need sa rituximab which is so mahal. but then to be prepared nag hinayhinay mi save ug tapok sa money anybody nga nagpadala nako ug help any amount amo jud gi dritso sa banko ate kay for rainy days gyud nah kay dili baya matag-an ang panahon...
so here is my bank details in case you wish to know.... baga kaayo nawung sah? sorry ate....
bank name: BANK OF THE PHILIPPINE ISLLANDS
account name: ELSIE AMILA
account number: 94-79-0542-55
mailing address: 6321, poblacion, pilar bohol, philippines.


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