Maajo na lang gani kay naay bangag. Ok na kaajo ning case nila. According to the following article, one in every 4,000 women way bangag.
Born Without
This is an article by Margaret Horsfield which was published in ‘She’ magazine (approx 1983). It gives an account of a girl with no vagina (but not with AIS) who achieved success with the Frank Pressure Dilatation method under the guidance of the then Chelsea Hospital for Women. London. The Gynaecology Department at the hospital (now renamed Queen Charlotte’s and Chelsea Hospital) still uses this as their method of choice and has a support mechanism in place to provide the necessary encouragement and motivation.
Congenital absence of the vagina is a rare condition, but not as rare as most of us would guess; about one in 4,000 females are affected. Half, like Susan, opt to try and overcome their condition without surgery. So far, hers is a remarkable success story.
In her early teens it wasn't so hard for Susan when the other girls were talking about their periods. She listened with interest. When her time came, all these comments about tampons and menstrual cramps and how to avoid gym class would come in handy. As the years passed, though, she became increasingly anxious – 14, 15, 16, and still no periods. She kept tampons and sanitary towels on hand, just in case, even hopefully packed them in her bag when she went away on holiday, but to no avail. Her friends and her sisters ceased to mention the subject to her, and she turned away, or tried to talk of something else, when periods came up in conversation. Visits to the doctor got her nowhere: “You're just a late starter,†she was told. So she waited some more; through 0-levels, through A-levels, but still no periods. By now she had reached 18.
All this time, Susan's mother Janice had also been concerned. But her worry was partly eased by the fact that Susan's development was otherwise perfectly normal. She was a very pretty, very bright teenager. She excelled at school in music and art; she had lots of outside interests and lots of friends, and a cheerful and comfortable family setting as one of four children close in age. To look at Susan, you would assume that nothing but good fortune surrounded her. But by the time she was due to leave home for university, Susan and her mother had decided that they needed to know more. Why had she not yet had a period? They both thought that there could be a hormonal imbalance. Susan went to see an endocrinologist.
Their hopes rose, because at first it looked as if they might be right. The reason must be hormonal. To try to jolt Susan's hormones into action, the endocrinologist put her on the pill for a month. But nothing happened. Susan returned to the specialist and was told that a rectal examination would be necessary, a technique which, combined with pressing on the abdomen, can reveal if anything is wrong with the shape of the uterus. The result was that Susan was referred to the Chelsea Hospital for Women to see Professor Sir John Dewhurst. Her problem was not hormonal, it was physiological.
Examination succeeded examination, and then one day Susan's mother was asked to go to the hospital on her own. Her daughter's condition was explained to her before Susan was told. The reason why she had not yet menstruated was that she had no vagina, and only a vestigial uterus. Congenital absence of the vagina, as the condition is known, is very rare, affecting approximately one woman in 4,000. When the vagina is absent, the uterus is almost always absent as well.
Professor Dewhurst, now retired from Chelsea Hospital, is one of about 20 doctors in Britain who specialise in this condition. Over the years he has seen scores of cases, but it is perfectly possible that a consultant gynaecologist could spend a lifetime in the business without seeing a single case like Susan's. At Chelsea Hospital two or three new cases might be referred every month, but these come from all over the country, and indeed, from all over the world. And almost always, the condition is completely unknown to, and unsuspected by, the patient and her family.
“We realised there must be something wrong physically,†says Janice, “but I never imagined anything so absolute. I thought perhaps the uterus might be poorly formed, or somehow not linked up properly to the vagina, but it never crossed my mind that there might be a total absence of the vagina and an almost total absence of uterus.â€
Susan was still unaware of all this. But just before the Christmas of her first term at university, Susan and her mother and her younger sister went up to London to spend most of a day at Chelsea. It was then that Susan was told.
“I just felt very cold†she recalls, “They gave me ultrasound and I could see my uterus. It's a sort of tiny stubby end – want me to draw it for you?†And she sketched out something about the size of a large knobbly end of a thumb. This ‘uterus’ is just useless muscle fragments; evidence of something that never formed in Susan’s body, and never will. Leading from it is no vagina at all; nothing but a mass of soft internal tissue.
Susan's case is typical. Externally, the genital area is perfectly normal, with clitoris, labia, and urethra all in place. But where the vagina should be there is only a small dimple or indentation. The length of this can vary from case to case, but is rarely more than a couple of centimetres at most, and can be barely perceptible. A visual medical check would not necessarily reveal the nature of the problem because the ‘vagina’ would resemble that of any virgin whose hymen is intact. Because doctors are generally reluctant to attempt an internal examination on virgins, the full nature of this condition is rarely revealed until late in the teens, and then by specialists. The earliest diagnosis Prof Dewhurst recalls making was for a 13-year-old, but her condition was somewhat different. She was suffering from the even more rare, and certainly more dangerous, condition of having no vagina but having a functional uterus, with a cavity capable of containing menstrual blood. She was at the age when menstruation began, but the blood could not escape from the uterus, and infection set in, with great pain. And diagnosis can come very late indeed. There is a recorded case of a woman who had been married for two years before finally seeing her doctor who referred her to Chelsea. She had been a virgin when she married, and she had never had periods, and when her husband was unable to penetrate she took it to be entirely her fault, something she was doing wrong. In fact, she had no vagina.
(
www.aissg.org/ARTICLES/BORN.HTM)
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